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Raising Bklyn

Mothering a neurodiverse daughter

"I wouldn't change you for the world, but I would change the world for you." --Amy Wright

We are all told, “cherish every moment”; I am here to do just that. Raising Bklyn serves as a vessel to document the joys and challenges of raising a daughter with a rare brain condition-- Agenesis of the Corpus Callosum-- and clue in my loyal readers as to what life is like in our crazy world. So, sit back, relax, and read on.

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Salvaging the "Perfect Holiday"

I was recently asked about my favorite holiday memory. It took half a second to conjure up the most precious moment that I will forever...

A New (Extended) Family: NODCC

I sat in a chair beside Chris in quiet anticipation of the first session, glancing meekly at the other parents sitting near me. There was...

Finding Joy in the Midst of Challenge

“Why does everything always have to be so hard with her?” With wet eyes, this is the phrase I heard leak from my lips in the parking lot...

Time Hop

Let’s catch up a bit, shall we? Today we are going to tackle about three years on the timeline, so buckle-up. Our experience in the NICU...

The Birth Story (part 2): Life in the NICU

Brooklynn remained in the NICU for 6 days. This is nothing compared to what many NICU families endure and I am so grateful for that– and...

The Birth Story (part 1)

The weeks following the news about the severity of the baby’s brain condition were met with an endless list of questions, scribbling...

Where It All Began (part 2)

A week later– an eternity for a worried parent– Chris and I were headed down the Henry Hudson Parkway to Columbia University Medical...

Where It All Began (part 1)

“There is something wrong with your baby’s brain.” All of the air is sucked out of my chest. It is as if my soul has left my body,...

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